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Seeas
Joined: 28 Nov 2006
Posts: 1
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 Posted: Tue Nov 28, 2006 6:04 pm Post subject: Progression of "Unilateral" Leukoencephalopathy? |
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Hello,
My 11 year old son has been diagnosed with Unilateral Leukoencephalopathy with abnormal white matter signal and lacunes, with unknown etiology. In previous MRI and SPECT images, only the right hemisphere has been effected. Now, we do suspect some possible progression into the left hemisphere as well. His Neuorlogist has directed to go online to find support and help for my son with this illness, and so here I am, seeking any iformation that you could provide.
I have put together a small web site, listing his symptoms, along with some of his test results, and afew of his most current MRI images, which have not been read or dx.'ed at this time. I am seeking information regarding if there is any lesion or abnormalities within his left hemisphere, as is suspected. Could you please take a look at this web site?
http://hometown.aol.com/cdc24/index.html
Any opinions, advice or any information what so ever is highly appreciated. I thank you for all your time and consideration.
Sincerely,
Carla D. Clark |
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hjhogle
Moderator
Joined: 23 May 2006
Posts: 587
Location: CT
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| Posted: Tue Nov 28, 2006 8:45 pm Post subject: Re: Progression of "Unilateral" Leukoencephalopath |
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| Seeas wrote: | | I am seeking information regarding if there is any lesion or abnormalities within his left hemisphere, as is suspected. Could you please take a look at this web site? |
Ms Clark, you sound quite familiar with healthcare. You need to know several things about medically focused forums. 1) this is an anonymous forum. Anyone is free to tell you anything at all, whether or not they have expertise. Answers you receive are more likely to be from used-car salesman than healthcare professionals. Why? Because 2) healthcare professionals know better than to offer diagnostic information on the basis of images posted on a website and viewed on a non-diagnostic quality computer monitor.
I urge you to seek an expert opinion from someone with nothing to gain who can appropriately review all diagnostic information. I suspect that if your neurologist suggested online searching for support, looking for online diagnosis might not be what they meant.
Heather J Hogle, RT
New Haven, CT |
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